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Share Your Story-Owen Hunt

Meet Owen Hunt!

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Owen Hunt is a character-he has a certain charisma about him of someone much older.  He is an inspiring 4 year old boy who loves to talk and tell stories, play with Legos, puzzles, his dog and, on occasion, his sister. On the outside, Owen is a very normal little boy, but on the inside he is battling heart defects and autoimmune disorders.


A few weeks after Owen was born his parents began to notice that something was wrong because he was having a lot of trouble eating and breathing. At two months old, doctors found that his aorta arched to the right instead of the left as it should and had fused with another blood vessel creating a vascular ring which was pinching his esophagus and trachea shut. To help fix this problem, Owen was operated on when he was 3 months old.

At 15 months old he had another surgery to repair another defect in his aorta called a diverticulum, which is like a "bulge" or pocket. In his short four years he has also been diagnosed with having a VSD (a tiny hole in his heart), BAV (two aortic valves instead of three), GERD/reflux, tracheomalacia (weakness in part of his trachea), structural abnormalities of his lungs, chronic bronchitis, severe eating delays, Esinophillic Esophagitis (an autoimmune reaction to food proteins), and an autoimmune disorder called PANDAS (brain inflammation caused by the body's reaction to strep virus).

Despite all of this, he is an adorable entertainer with so much enthusiasm and creativity!

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