6 Oct 2015

Share Your Story-Owen Hunt

Meet Owen Hunt!

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Owen Hunt is a character-he has a certain charisma about him of someone much older. He is an inspiring 4 year old boy who loves to talk and tell stories, play with Legos, puzzles, his dog and, on occasion, his sister. On the outside, Owen is a very normal little boy, but on the inside he is battling heart defects and autoimmune disorders.

A few weeks after Owen was born his parents began to notice that something was wrong because he was having a lot of trouble eating and breathing. At two months old, doctors found that his aorta arched to the right instead of the left as it should and had fused with another blood vessel creating a vascular ring which was pinching his esophagus and trachea shut. To help fix this problem, Owen was operated on when he was 3 months old.

At 15 months old he had another surgery to repair another defect in his aorta called a diverticulum, which is like a "bulge" or pocket. In his short four years he has also been diagnosed with having a VSD (a tiny hole in his heart), BAV (two aortic valves instead of three), GERD/reflux, tracheomalacia (weakness in part of his trachea), structural abnormalities of his lungs, chronic bronchitis, severe eating delays, Esinophillic Esophagitis (an autoimmune reaction to food proteins), and an autoimmune disorder called PANDAS (brain inflammation caused by the body's reaction to strep virus).

Despite all of this, he is an adorable entertainer with so much enthusiasm and creativity!

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For good and valuable consideration, the receipt of which is hereby acknowledged, I hereby grant to the American Heart Association (“AHA”) and its successors and anyone authorized by it the following unrestricted rights and release, all of which may be exercised without geographical, time or other limitation: In regards to the submission of stories, video or digital recordings, whether of an audio or visual nature, and photographs (collectively “Submitted Material”) for use by the AHA, I hereby release the AHA from all liability, and make the following grants and representations in connection therewith:

(a) The right to record, photograph and/or otherwise use, produce, copyright, transmit by radio or television, use on internet, distribute, exhibit and, as applicable, exploit my likeness, voice, statements, acts, poses, plays and appearances, and all other effects resulting from my services rendered in providing the Submitted Material, it being understood that the rights granted may be exercised in any and all media whatsoever.

(b) All my right, title and interest in all negatives, tapes, transparencies, prints and reproductions of the Submitted Material, including all copyrights, the right to copyright the Submitted Material anywhere in the world and the right to obtain renewals thereof and the right to use, sell, lease or license any of the foregoing, it being understood that AHA shall have the right to cut, edit, alter, interpolate, repurpose and otherwise change the story and to divide the same into as many parts as they desire wherein each part or combination of parts of the presentation may be used alone or together.

(c) I represent and warrant that the information provided to the AHA is a true and accurate account, is original, does not infringe on another’s copyright or other proprietary rights, is not defamatory and that I have full right and authority to disclose and convey the Story or provide the Photograph(s) and/or video recording to the AHA.

(d) I hereby waive all reuse fees or such other fees which might be applicable to the above stated grant and release.

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I represent and warrant that I am of legal age and have the right to enter into the aforementioned agreement of release.