Share Your Story: Lindsey L.


Lindsey, Oregon

In 2010 my beautiful son Kaleb was born. It wasn’t until 14 hours later that a pulse oximetry test was done only to discover he had an undiagnosed critical congenital heart defect. Kaleb has critical aortic stenosis, endofibroelastosis and his heart was working at less than 10%. He wasn’t expected to live. Two years and two surgeries later he’s doing well but will need a lifetime of surgeries. We'll never know how much damage could have been avoided if he'd been tested right at birth and that has motivated me to make sure every newborn in Oregon has the opportunity to be screened with pulse oximetry.

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