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Share Your Story: Katelyn Larson

Meet Katelyn Larson

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Katelyn Larson was born a beautiful and healthy baby but suddenly at 3 months old, she became very sick. That night she would not eat, started choking, her lips turned blue and she became lethargic.

Her parents raced her to the closest ER in Ida Grove, IA where an X-Ray showed an enlargement in her heart. Children's Hospital and Medical Center in Omaha was contacted and they sent their own ambulance to transport her to Omaha. More tests were run and her breathing and condition rapidly grew worse. She was rushed into the PICU and was hooked up to life support, and unfortunately she stopped breathing and had to be resuscitated.

That morning her parents were told that her left heart chamber was enlarged to twice its normal size and that she would most likely need a heart transplant! She was diagnosed with dilated cardiomyopathy, caused by a genetic marker and a virus that went to her heart. She was placed on the heart transplant list and waited 28 days for her new gift of a healthy heart. She was released to go home and reunite with her two older brothers after being away for almost 3 months.

Today, Katelyn has passed all of her growth markers and is an active and vibrant 2 year old. She is now only on 3 medications, down from 15. She is an overcomer and reminds us all of how precious life is. 

Katelyn is now helping spread the word about congenital heart defects, which occur at the rate of 1 in every 100 babies. She will be the 2016 Ambassador at the Sioux City Heart Walk which is being held on May 14th!

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