While to some, May 8 may just seem like any other day – to North Carolina advocates, this is a day to celebrate an anniversary. On May 8, 2013, the Pulse Oximetry bill was signed into law by Governor McCrory.
Even though the policy journey is never easy, knowing that lives will be saved make it all worthwhile.
Valerie King, NC Advocacy Coordinating Committee member, YTC advocate – and most importantly, mom to 7 year old Greta who, shown here, was born with a congenital heart defect, shared her thoughts on this two year anniversary: "The Pulse Ox bill was not the easiest to convince our legislators to work for but we have some persuasive stories. These little heroes go through so much in their small lives how can we not fight for them? Two years ago today, 2 dear friends and parents of CHD warriors got to stand with Gov. McCrory and watch him sign this bill into law. I have spoken to a number of families that are thankful for the work that was put forth by a wonderful team. I am simply proud to have been a part of it, and have the opportunity to know that these babies will have a better chance of survival by these defects being detected sooner!"
Kathryn Rose, another NC resident and parent, wants others to know how much of a difference this law has made in her life and to her family: "Even after having great prenatal care, high-tech ultrasounds, an uneventful delivery and perfect newborn assessment, our son had absolutely no sign of health concerns. He was a healthy baby boy ready to go home after twenty-four hours, but the pulse oximetry test results sent him to the NICU. … This simple pulse oximetry check bought him time to grow a little stronger and gave the doctors two days to observe all of his little parts. Thanks to this legislation, more North Carolina newborns with heart defects will be identified early and interventions started under the care of great medical staff. Our son has had a chance to grow up into a strong and courageous toddler!"
While at times the policy process can seem long and drawn out, as we celebrate May 8th all across North Carolina, we want to take this opportunity to thank our advocates for helping us save lives. Your advocacy is making a difference. Thank you for being a lifesaver.