Katie Towle knows there are two things that can help a child when they are born with a heart defect – a life-saving test that can help detect it, and the support of other families with children who also have heart defects.
Katie helped promote the need for mandatory pulse oximetry testing for newborns at our legislative reception this winter. She’s a big advocate because her son Jack did NOT receive this test when he was born.
Katie said then, “Had this simple, painless test been done upon birth, we may have been able to have his repair surgery months earlier and avoided so many hospital stays with over 30 nights cumulatively away from our older child, our home and our jobs. Due to the delay in his surgery, Jack’s growth was significantly delayed and his physical development fell drastically behind the national standards.”
Katie will be promoting that pulse oximetry be the standard screening adopted when the Vermont Health Department undertakes a rulemaking to require congenital heart defect screening this year.
She also just formed a cardiac kids’ support group of parents and kids with congenital heart defects. We all had a great time attending the Lake Monsters game together this summer! If you have a child with a congenital heart defect, let me know. We’d love to connect you with this wonderful group and we would also love your help in requiring this test for newborns in Vermont. My email is [email protected].