Jamie, Rhode Island


Jamie's story...shared by his Mom, Shannan.

Jamie was diagnosed with congenital heart defects 22 weeks in utero.  He was born in March of 2009 and was diagnosed with Pulmonary Atresia with Intact Ventricular Septum, Hypoplastic Right Heart Syndrome, and coronary defects.  He has endured 3 open heart surgeries and several cardiac catherizations. Though his diagnosis was grim, he overcame all odds and is now an active 4 year old boy.  He loves school, his friends, his special heart, and Jesus.  Though his heart is repaired, he is not "cured."  Though Jamie will need intervention at some point, we are blessed for his good health.

This year, Jamie is representing the American Heart Association as the Southern New England Little Heart Hero Ambassador. Together with his family, he is working to motivate others to join the fight against congenital heart defects by raising lifesaving funds for research and awareness. He’s only four and a half, but he knows what it means to be brave, smart and kind. He is an inspiration to us all!


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