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Charlotte and Rachel Richey, Kentucky

On May 28, 2015, four-year-old Charlotte was diagnosed with an electrical heart condition called Catecholarminergic Polymorphic Ventricular Tachycardia (CPMVT). The diagnosis came after she had two incidents in which she lost consciousness and had to have CPR performed to save her life. 

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After follow-up appointments and many tests, Charlotte was diagnosed with this condition that has no cure, but right now is maintaining very well with preventive measures. Charlotte is always at risk of v-tach, either from too much physical activity or from emotional stimulus that raises her heartbeat. She is on medication, but many preventive measures have been put into place, including CPR recertification for her parents, ensuring that other caregivers are CPR certified, and the purchase of an AED that stays in the home or travels with her.

Charlotte is a very lively little girl who does not meet a stranger and is full of personality. It is hard to slow her down, but it is necessary at times because of the possible risk of v-tach. She did not exhibit any symptoms prior to her first incident, which at that time was diagnosed as a concussion. Luckily, with persistence and recommended testing, we were able to find answers, even if it was difficult to process. We are very confident in her care and the precautions that we are taking, but it would offer great peace of mind if more individuals were CPR trained and could offer a quick response if a problem did present itself.

--Rachel Richey, mom to Charlotte

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